What is the best advice you’ve ever gotten, or advice you can give about how to live well with chronic disease and pain
I can’t remember any specific time or advice someone has given me to deal with a chronic disease.
As bad as it sounds, I have really had this chronic journey alone. Yes, my family and friends have been VERY supportive but I have never had anyone who suffered from a chronic disease as a friend. Someone who knew exactly what I was going through.
It has only been in the last couple of years that I have tapped in and join the online spoonie community and it has been such a blessing! It is a constant reminder that I am not alone and there are others who struggle too.
I guess that would be my advice: join spoonie communities online. They are a great resource! I have found a lot of great information on arthritis and other health concerns.
My favorite, and I believe most important, reminder these communities tell me is that I am not alone. People out there are struggle just like me. They are strong and I can be strong too. Together we can get through this.
You don’t have to go through this battle along. I advise you not to go alone. You will gain more strength by reaching out and learning from others.